
This is our sweet little Valerie Ann. It is not confirmed yet, but she apparently has a condition called Protein Losing Enteropathy (PLE), a complication resulting from a surgery she had in April 2005. It was the Fontan Procedure, the final surgery in the series of three, that children born with Hypoplastic Left Heart Syndrome must have if they are to live. Five to ten percent of the children who undergo the Fontan Procedure develop PLE at some point. It is not a good thing to have. The cause is not known, and there is no cure nor definite treatment for it yet.
We are hopeful that the progress of PLE will be slow for Valerie, that she will respond to the recommended medications and treatments and will yet have many years of good life ahead of her. Being grandparents is wonderful, and we love all our grandchildren so very much. It's hard, though, when one of them has serious health conditions like our little redhead. Our hearts ache for her and all she has to go through, and we ache for her parents who face it all so bravely while it must be tearing them apart inside. Aaron and Janele, we love you, and our hopes and prayers are with you and your family.
I am very grateful for the understanding the Gospel gives us about the necessity of trials. We know that we are here to be tested, and that there is Divine purpose in our challenges. But knowing it doesn't make it easy when things happen that make us feel like we are being dumped on. My challenge with MS provides ongoing "tutorials" for me that I never knew I needed, and I've been unhappily surprised at times to have personal weaknesses and vulnerabilities exposed by it.
Without being specific, I will say that when trials come there are many challenges beyond what is obvious. It is easy to see that I have great difficulty with mobility now, and that it is continually getting worse. Also obvious is the hearing loss that I (and my family) have had to put up with for many years. Although such physical disabilities are hard to deal with, they may only be "instruments" through which the real tests come - tests to prove who we really are as our emotional and spiritual foundations are tried. I didn't know that I needed such "internal" testing, but the Lord did.
I believe little Valerie knew what she would face, physically, before she came here, and that she understood her problems would accomplish Divine purposes. I say that because as soon as I was diagnosed with MS, it was like, "Of course!" I didn't like the diagnosis, but there was a calm realization that I'd already known this disease would be mine - and I believe that knowledge came with me through the veil. The Lord may try us in ways we think we can't bear, but if we will be submissive to His will, He will provide the comfort and strength we need to either get through the trials or live with them. The most important thing is to not let them pull us away from Him. . .and sometimes that is the true test. We must have faith that somehow things are the way they are supposed to be, and that if we are obedient and faithful to Him, He will wipe away our tears and make everything right in the end. Thank the Lord (literally) for the Gospel which helps us to see the "big picture."